July 12, 2024
More than 10,000 rare diseases, defined as those affecting fewer than 200,000 people, impact the lives of over 30 million Americans. People living with rare diseases face unique challenges such as receiving a timely and accurate diagnosis and obtaining adequate health coverage, including affordable access to care and treatment. Join us to learn about ways states can address out of pocket costs for patients living with rare disease.
Moderator
- Colleen Becker, project manager
Speakers
- Melissa Horn, director of state legislative affairs, Arthritis Foundation
- Sharon Lamberton, deputy vice president state policy and external outreach, Pharmaceutical Research and Manufacturers of America (PhRMA)
- Sean Dickson, senior vice president, pharmaceutical policy and strategy, America's Health Insurance Plans (AHIP)
- Sen. Karen Karls, North Dakota
- Rep. Emerson Levy, Oregon